Tag Archives: memory

Living with Lyme Disease – 30 years and counting…

(The recording above is the radio program “Lyme Disease Controversy Comes to the Capitol“, broadcast on New Hampshire Public Radio by Elaine Grant on Monday, February 01, 2010.)

I have Lyme Disease. I caught it when I was around five years old.

Ixodes scapularis (aka 'Deer Tick')
Ixodes scapularis (aka

You get it from the ‘deer tick’ (aka the ‘baby tick). Fundamentally, Lyme disease is a bacterial infection.

Where did this all begin? Well, let me tell you…
I was about five years old (my memory of precisely when is obviously not perfect). I held no fear of ticks or insects, having grown up barefoot and wild in the forests and swamps around Chappequa, New York. As most young children are, I was impervious to any fear of nature, insects or animals.

Ticks do not crawl across the skin like many other parasites, nor do they hop around as 6 legged jumping beans like fleas (yech!). They find a nice, sometimes shaded, piece of skin (mine was behind my ear) and begin to make a home for themselves.

Continue reading Living with Lyme Disease – 30 years and counting…

vapour trails

Trails of what
We have left behind drag
At our conscious mind and tease
The monolithic iceberg underneath
As we walk, slowly gathering speed
Along the channel of ever forward
Moving time, changing the face of
Our deepest thoughts, our wholest
Selves, until we no longer
Recognise ourselves, in what
We say and do, only the wonderment
That is our place to hold, to see
To question and delve, picking apart
The past, as if it were a meal unwanted
As a child picks at tasteless white fish
Smelling the rank harsh randy flesh
Not wanting to bite, swallow, digest
So we pick through the remnants
Of our past, wishing partially at least
That we didn’t have to, that somehow
Someone else was at fault for any
Unhappiness, any duplicity or downright
Cruelty we may have visited on this world,
Only to find, if we are brave enough to look
To pick, to chew, swallow and digest
The truth of who we are, and where
We came from, that the worst is not
So bad, yet something different
Entirely, just us, as we are, raw,
Some scent of fish hanging in the
Stale air of remembering our lives
Sometimes hot, sometimes cold, but
Always true. If we can, look
Inside, see ourselves and our
Choices, for what they are we will
See the past is just a trail of long
Lost hopesdesiresdreamsfantasies dragging gossamer threads
Of distorted personal reality behind us
Until we no longer can disentangle
Ourselves from the truth, for we are
What we do. Maybe if we stop
For a moment, reflect, pick at
The rank meal we have made of
At least some of our lives we will
See that this is not the end, just
The beginning – that we are all one
That we can make a better tomorrow
One day at a time, one of us at a time,
One choice at a time, it is never
Too late.

broken humachine

The sad lost rundown engine
Turns, spinning us off into
An infinity of unknown confusion,
Our forlorn loneliness, just another
Tear, drop in the ocean, heart-string
Plucked, resonating the sound of our loss, deep
Down in the gut of our source, where
We all came from, first pushed, then pulled,
Grabbed, hung upside down for a moment,
That first screaming searing burning blindness,
The first coughing clutch of outside poison air,
The first disappointment, the first
In a line of continuing disappointments,
Our own failings and fate’s cruel tricks
Of giving us precisely what we ask for,
If only we remember those requests made, long
Before we had a clue what the outcome of our
Wishes could ever be, this we take
All in our stride, breath deep the air of
Regret, wonder where the time went
And pray that we don’t end up embittered
Like all the grumpy negative kind, so happy
To be miserable, reminded every day
By their own shit-tinted glasses
How nasty the world is, while
The rest of us carry on, making
The most out of what we have,
Breathlessy running from one extreme
To another, learning forever that karmafatelucksodslaw wins, every
Time picking ourselves up, dusting ourselves,
Off, heading out into the world
Bright eyed and bushy-tailed,
As if the next time the bruises will have healed first, instead of
Compounding rotten emotional fracture with fresh psychological bruising,
Able to get up and carry on, yet kicking ourselves
For being so foolish to think the next time
Will be any different, as if we have forgotten
That first screaming burning blinding breath
Of noise polluted air, poisoned by the very liquid life
That we grasp gasping to the very end,
None of us more terrified then I of dying
Reaching vainly for that last breath, sucking
Ineffectually at dying lungs, weak
From the effects of living, breathing
That polluted air –
When a moment strikes, a man on the train
The melodrama stops, inner voice momentarily stunned into silence,
Like breath held in aweshockwonder at dawn breaking silent
Over a desert mountaintop, this man, at first
Glance, nothing more than a ‘trainspotter’, someone
Lost between this time and tomorrow, mind’s
Eye fogged up with imagesemotions living memories
Taking up all of his mental and emotional
Space, clouding his eyes to what is,
Breath held as we watch him
Sift through a plastic bag of
Old letters, bills, paperwork,
Moving files from place to place, as if
It mattered where each sheet was, forgetting even
As he moves them, one envelope at a time
Why he bothers, perhaps peaking sanity
Up through the depths of fogged consciousness,
Eyes meeting other commuters, seeing enough
To survive, judging benign from dangerous,
Only survival level awareness left, this man
Who once clearly had a ‘life’, just as
You and I, now sits befuddled on a train,
Confused even by his own busy hands sifting
Through his own well-fingered materials,
How many times has he picked up this same envelope,
Looked at it bewildered, perhaps unsure of why he holds it still,
All of the previous memories of holding
This same letter perhaps giving him some anchor
In reality, a touchstone for the remainder
Of his sanity, as we know it, but
Still we stand, holding our breath, watching
The lost movements of a ‘broken’ humachine, lost
But still all there, as much us as we are him, and
We are reminded of the cruelist of life’s mean japes, that
Even the most astute, sharp, aware, in
Control amongst us can slip and fall, for
Something as simple as a misfired neuron, missed timing,
Misconnection primed, made and with repetitious visits,
Ironed into place, the frailty of the human mind,
Human kind only holding onto this ‘reality’ by a gossamer thread,
Waking up one bright loud screaming gasping nightday, working
Endlessly to reach ulterior goals, outside of
Who we are, forever reaching and striving
For the ever disappearing horizon, only
To end up dead, as we all will
Eventually. Until we see him,
Sitting on the train, alive and hearty,
Yet ‘not all there’, out of touch, and
We freeze, remembering how life can be the
Most fickle of bed partners, first searing pain,
Fear, screaming blindness,
Then life’s ups and downs, bumps
And grinds, all in hopes of something better,
Whether in this life, or the next depending on
Prevailing religious views, only to be
Stopped dead, as it were, in our tracks
By a single man, lost as a young child left
All alone by mistake,
Separated from parents
By cruel twist of fate, corner turned
Too fast, another wipeout in life’s 24 hour
Race, reminding us there is more
To life than striving, we live,
We die, we lose, and
We get lost,
This is our life.
This is our premise,
Life’s bitter sweet decline
It all ends in the same terminal
Way, why not enjoy what
We have, before it
Has all gone.

The Market Lane horses

Standing slightly bedraggled
Sad Gordian Knot hair hanging listlessly,
They gaze querily, beyond the edge of the field,
Rubbing chins against the broken fence
Overpowering memories of what they once were,
Wild and free, powerful and hungry
Eager to bolt and run with the herd,
Nostrils flaring, hooves pummelling the earth into happy submission,
One more pounding heartbeat of mother earth’s naked crust,
Memories cripple their hunched majestic necks,
As they stand there, so still
Their mad eyes remembering
What their bodies never will
That once upon a time,
In their cells remembered past,
They were free to run riot,
To breath perfect air, run anytime
anywhere. Now
Having been harnessed,
Brought to the brink,
Given slavery instead of freedom,
They’ve gone mad,
And stand rubbing chins
on bent metal fences,
Staring into the end.

The Market Lane horses,
Once so free, proud and gay
Stand stock still, til beckoned
Eyes blaring mad, empty thoughts,
Forlorn hearts steeped in soul-cell memories
Of better days, of freedom
of life.